SusztakLab Biobank

Kidney data map

Kidney data beyond our laboratory

A curated map of 28 public resources from other groups that complement the atlases on this site: population genetics from the large consortia and biobanks, the NIH kidney cohorts, expression and protein QTL catalogues, and the single-cell, spatial and epigenome atlases of the wider community. Together with the SusztakLab Biobank they make one starting point for kidney data. These resources are maintained by their own groups; follow their terms of use and cite their publications. Suggestions for additions are welcome at ksusztak@pennmedicine.upenn.edu.

NIH kidney cohorts and consortia 8

NIDDK Central Repository

The NIH repository for clinical data and biosamples from NIDDK-funded kidney studies; request access to CRIC, NEPTUNE, CureGN, AASK, MDRD and others in one place.

CohortsBiosamplesControlled access
repository.niddk.nih.gov

CRIC, Chronic Renal Insufficiency Cohort

Longitudinal cohort of about 5,500 adults with CKD: phenotypes, outcomes, genotypes, proteomics and metabolomics; the source of our blood methylation atlas.

CohortCKDControlled access
repository.niddk.nih.gov

NEPTUNE, Nephrotic Syndrome Study Network

Biopsy-based cohort of nephrotic syndrome (FSGS, MCD, membranous) with transcriptomics, digital pathology and outcomes; companion eQTLs are at NephQTL.

CohortGlomerular diseaseBiopsy
repository.niddk.nih.gov

CureGN, Cure Glomerulonephropathy

Prospective cohort of more than 2,400 children and adults with biopsy-proven IgA nephropathy, FSGS, MCD and membranous nephropathy.

CohortGlomerular diseaseBiopsy
repository.niddk.nih.gov

Kidney Precision Medicine Project (KPMP)

NIDDK consortium collecting research biopsies from people with CKD and AKI; the Kidney Tissue Atlas below holds the molecular data.

ConsortiumBiopsyAtlas
kpmp.org

(Re)Building a Kidney (RBK)

NIDDK consortium on kidney development, repair and regeneration, with organoid, imaging and single-cell data.

ConsortiumDevelopmentRegeneration
rebuildingakidney.org

United States Renal Data System (USRDS)

National surveillance system for CKD and kidney failure in the United States: incidence, prevalence, treatment and cost, with an annual data report and researcher data requests.

EpidemiologyRegistry
usrds.org

dkNET

NIDDK's information network that catalogues data repositories, tools and resources for kidney, urologic and metabolic research.

Directory
dknet.org

Human genetics and GWAS 7

Expression, QTL and proteomics 6

Single-cell, spatial and epigenome atlases 7

Listing curated by the Susztak Laboratory; last reviewed September 2026.