SusztakLab Biobank

Kidney data map

Kidney data beyond our laboratory

A curated map of 28 public resources from other groups that complement the atlases on this site: population genetics from the large consortia and biobanks, the NIH kidney cohorts, expression and protein QTL catalogues, and the single-cell, spatial and epigenome atlases of the wider community. Together with the SusztakLab Biobank they make one starting point for kidney data. These resources are maintained by their own groups; follow their terms of use and cite their publications. Suggestions for additions are welcome at ksusztak@pennmedicine.upenn.edu.

NIH kidney cohorts and consortia 8

NIDDK Central Repository ↗

The NIH repository for clinical data and biosamples from NIDDK-funded kidney studies; request access to CRIC, NEPTUNE, CureGN, AASK, MDRD and others in one place.

CohortsBiosamplesControlled access
repository.niddk.nih.gov

CRIC, Chronic Renal Insufficiency Cohort ↗

Longitudinal cohort of about 5,500 adults with CKD: phenotypes, outcomes, genotypes, proteomics and metabolomics; the source of our blood methylation atlas.

CohortCKDControlled access
repository.niddk.nih.gov

NEPTUNE, Nephrotic Syndrome Study Network ↗

Biopsy-based cohort of nephrotic syndrome (FSGS, MCD, membranous) with transcriptomics, digital pathology and outcomes; companion eQTLs are at NephQTL.

CohortGlomerular diseaseBiopsy
repository.niddk.nih.gov

CureGN, Cure Glomerulonephropathy ↗

Prospective cohort of more than 2,400 children and adults with biopsy-proven IgA nephropathy, FSGS, MCD and membranous nephropathy.

CohortGlomerular diseaseBiopsy
repository.niddk.nih.gov

Kidney Precision Medicine Project (KPMP) ↗

NIDDK consortium collecting research biopsies from people with CKD and AKI; the Kidney Tissue Atlas below holds the molecular data.

ConsortiumBiopsyAtlas
kpmp.org

(Re)Building a Kidney (RBK) ↗

NIDDK consortium on kidney development, repair and regeneration, with organoid, imaging and single-cell data.

ConsortiumDevelopmentRegeneration
rebuildingakidney.org

United States Renal Data System (USRDS) ↗

National surveillance system for CKD and kidney failure in the United States: incidence, prevalence, treatment and cost, with an annual data report and researcher data requests.

EpidemiologyRegistry
usrds.org

dkNET ↗

NIDDK's information network that catalogues data repositories, tools and resources for kidney, urologic and metabolic research.

Directory
dknet.org

Human genetics and GWAS 7

Expression, QTL and proteomics 6

Single-cell, spatial and epigenome atlases 7

Listing curated by the Susztak Laboratory; last reviewed September 2026.